Structured Care for Individuals at Risk for Familial Cancer Syndromes in a Family Medicine Residency

About This Grant:

We will develop and evaluate a patient-centered, primary care team based approach to identifying, evaluating, and managing individuals at high risk for cancer by virtue of family and personal health history.

The project will include patient and provider educational activities as well as piloting of new clinical workflows designed to better co-ordinate the care of individuals and families at elevated risk for cancer. Outcomes to be evaluated include patient and provider perception of care coordination, provider knowledge, skills and attitudes related to familial cancer syndromes, and patterns of uptake of cancer genetics services. This project will be conducted at practice sites of the non-profit Maine Dartmouth Family Medicine Residency in central Maine.

Collaborating organizations include The Jackson Laboratory and the Maine Medical Center Cancer Risk and Prevention Clinic. Novel aspects of this project are its primary care orientation, its location in a physician training environment, the use of a patient-completed family health history tool on tablet PCs, and the integration of telemedicine services. It is hoped that lessons learned and resources developed from this project might be useful to other primary care environments in Maine and beyond.

Goals:

  1. The Maine Dartmouth Family Medicine Residency (MDFMR) and collaborators from The Jackson Laboratory (JAX) and the Maine Medical Center Cancer Risk and Prevention Clinic (CRPC) will develop, pilot, and evaluate a structured approach to patient engagement, risk assessment and management for individuals at risk for familial cancer syndromes at Four Seasons Family Practice (FSFP, Fairfield, ME), one of three MDFMR primary care practice sites.
     
  2. The collaborators will develop, implement and evaluate a year-long educational program focused on common familial cancer syndromes for residents, faculty and staff at MDFMR.
     
  3. Based on experience gained from completing Aim 1, the collaborators will implement and evaluate a structured approach for risk assessment and management for individuals at risk for familial cancer syndromes at both the Family Medicine Institute (FMI, Augusta, ME) and the Maine Dartmouth Family Practice (MDFP, Waterville, ME), the two remaining MDFMR primary care practice sites. We believe that we have a unique opportunity to collaboratively develop and pilot an innovative, sustainable, structured approach to enhancing the identification, assessment, and management of individuals at risk for familial cancer syndromes within the MDFMR primary care clinics located in Augusta, Waterville, and Fairfield, ME. This project is exploratory in nature and has the potential to inform future research activities as well as the development of similar programs in primary settings in Maine and beyond. The proposed program fits well into the emphasis the Maine Cancer Foundation places on access to high quality cancer screening and prevention services for all Maine citizens. To our knowledge no similar effort has been undertaken for Maine citizens, and we are unaware of any similar ongoing projects in a primary care or family medicine residency training environment nationally.

 

$84,784
2015
Research
Screening

MAINE CANCER FOUNDATION GRANTS TO THIS ORGANIZATION:

Year Grant Title Category Amount Grant Recipient
2015 Structured Care for Individuals at Risk for Familial Cancer Syndromes in a Family Medicine Residency Research, Screening $84,784 Maine Dartmouth Family Medicine Residency